July 2025 Update

Health Update

My apologies again for the dearth of updates, but thankfully, my journey with cancer has become rather boring! My CT scans have gone from every three months to four, and my brain MRIs from every three months to every six – both signs that my immunotherapy treatment has been very effective. To recap, I started with 13 tumours/lesions – 10 in the brain, one in a lymph node, one in an adrenal gland, and one in a lung. The one in my lung is still visible but doctors think it is inactive. The rest are just scar tissue. Can’t complain about that result. I’m continuing monthly treatment at Princess Margaret Hospital, which consists of a few hours for blood tests and review by the oncologist, and a 45-minute IV treatment the next day, and of course, periodic CTs and MRIs – definitely not a hardship! Just have to keep working to recover my stamina as it’s notably lacking.

Recently, my oncologist reported that recent studies indicate people (like me) who have responded well to the treatment have a 90% chance of living 10 years. When you factor in that this treatment is relatively new, with limited long-term data, I’m definitely going to assume this is a minimum survival rate. LOL.

Family Update
Mary Eleanor Stephens 1933-2025

And I’m hoping I’ve inherited my parents’ long-life genes. My mother passed away this past New Year’s Eve, aged 91. While she passed peacefully, her last few years were challenged by dementia and the fragility of her body. She insisted she no longer wanted a funeral, as none of her friends were still alive to come. I had to gently remind her that funerals weren’t really FOR her – they were ABOUT her, but they were FOR us. She begrudgingly agreed, so we held a “celebration of life” reception attended by about 75 people, including the friend who set my parents up on a blind date, 70 years before!

John Franklin Stephens

My father had been living on his own (while my mother was in a nursing home) in the rather large “ancestral” home built by my great-great-grandfather circa 1869. Being a rather social type, he decided to move into a year-old seniors home just up the road in Brighton. He describes it like being on a cruise ship without a pool, and it IS very nice. And at 92, he continues to do all kinds of online research for and about people. His latest project is about the people who owned the farm on which the seniors home was built – Russian aristocrats who managed to escape after the 1917 revolution and had various adventures before settling down in Brighton.

The Valleau House, built c. 1869 by my great-great-grandfather, Cornelius Valleau, descendant of Loyalists who settled Adolphustown in 1784.
New Family Member
Apollo (left) and Zeus (right) in one of the rare moments when they weren’t wrestling!

I’m pleased to announce that Apollo now has (a sometimes annoying) little brother appropriately named Zeus 😉 That said, I’m not quite sure what made me think getting a new puppy was a good idea… Zeus is now 6 months old, and Apollo will be 14 years old in August. Despite the fact that one just wants to play (whenever he’s not sleeping) and the other is so over playing with anyone, I think they might be starting to work out how to survive together (the photo at right and the one at the top of this post are definitely misleading!) Some of you will remember Apollo (who, as a pupp,y looked very much like Zeus) coming into our Ministry of Culture office and occasionally marking his territory when he wasn’t sleeping under my desk.

Not sure if it’s a pro or con, but at this point, Zeus is a little too chaotic to walk together with Apollo, which means twice as many walks for me – good for building stamina, I guess, but in this heat not the most pleasant undertaking…

The “Peoples” of Forest Hill Village

And totally not related to my cancer journey – as many of you know, I live in a four-story walk-up in Forest Hill Village on Spadina north of St Clair. Luckily, I’m on the lower level, so only a few steps to worry about. For my heritage related friends, the building, like the others around it, was built in the 1920s when Forest Hill was still a stand-alone village outside of the City of Toronto. And while hundreds of people walk over it every week, there is a manhole cover in the sidewalk near my building stamped 1927! I’m already planning a birthday party in 2027 LOL.

Since I spend a lot of time walking dogs (and some occasional shopping) in my neighbourhood, I usually pass lots of people depending on the time of day and while waiting for them to do their business (the dogs, not the people!) I have lots of time to observe them (the people, not the dogs!) While out for dinner with neighbours last week, we agreed that many can be grouped in certain categories.

  • The Housewives of Forest Hill (HOFH) – These are mostly younger or trying to stay young, women in tight-fitting workout clothing, coming to or going from the nearby gym to their giant SUVs, most often with earbuds in, listening to…well, who knows. They rarely make eye contact and really only interact with others of their ilk. Apollo and I passed two HOFH just the other day and overheard one telling the other, “We’ve been planning our honeymoon for Australia and Fiji in December.” Maybe I’m just jealous (not really!)
  • Students – Bishop Strachan School is at the end of my block, and Upper Canada College is a few blocks further. That means three times a day, there are “hordes” of students walking to or from the subway or into the Village for lunch. They are usually loud and a bit rambunctious but generally polite, and at least they aren’t stealing hubcaps or cars or worse 😉 Of course, it’s much more peaceful this time of year with just a few involved with both schools’ summer camp programs.
  • School Staff – Clearly, there are lots of teachers and admin staff also coming to and fro from both BSS and UCC, either in the morning, afternoon, or just to grab a coffee in the village. When I was still working, I’d often pass them in the opposite direction on my way to or from the subway. Many have learned the dogs’ names and stop to acknowledge them (just the dogs, of course.)  Several years ago, one of the teachers invited Jazz and Apollo to her retirement party in the staff lounge. I tagged along just, well…because. I watched some of the younger staff get married and now drop their kid(s) off at the daycare across the street.
  • Daycare Parents – There are two daycares located at the end of my block and on almost all my dog walk routes. These parents are usually preoccupied with getting their kiddies out of their car seats and into the daycare – or, of course, the reverse in the afternoons. They are pleasant enough, although they usually are only chatting with other daycare parents. The most we get is “Oh look at the puppy – isn’t he cute?” I smile at them, but clearly I’m just the supporting cast…
  • Domestic Staff – The multi-million dollar homes that start at the end of my block employ plenty of nannies and housekeepers who are almost exclusively Filipino. (The short bus route from St Clair West subway up Spadina to Eglinton and back is often referred to as the “nannie express.”) They are much friendlier than the HOFH, usually smiling and often saying good morning. One has been saying hello for probably 15 years or more and knows my previous and current dogs’ names. There are also school cleaning staff we pass on that last walk on the night as they head to the subway – again always pleasant even at the end of a late shift.  I sometimes feel they are invisible, particularly to the HOFH.
  • Neighbours with Dogs – Anyone who has dogs knows that you often end up getting to “know” other dog owners in your neighbourhood, and I’m no exception. That’s assuming your dogs get along – or at least won’t attack each other while you’re chatting away and sharing neighbourhood gossip (I admit it!) Sometimes it’s just a pleasant wave to the other side of the street if your dogs don’t play nicely together. And their is sharing both the sadness of losing a pet, and the joy of getting a new one.
  • The Plurality – The largest “group” are just those out for a walk or heading into the Village for refreshments or ice cream. Several call my dogs by name. At the minimum, it’s a smile and a good morning. They are usually older (I’ll leave that undefined) and I’d guess often retired. They always make the sometimes tedious walks a more pleasant experience.

There are a few people who don’t fall into any of the above, obviously. During the school year, there is a friendly crossing guard in front of BSS who always says hi to whichever dog I have at the time and unsuccessfully tried to give my picky Apollo a treat the first few times we met. He also shared that he recently downloaded an app to identify the birds in the area by their songs, which I subsequently downloaded and love (“Merlin” from Cornell University.)

There is the “collector” who weekly wheels his shopping cart on an amazingly long route to collect beer cans and wine bottles to return for the deposits. He’s a pleasant fellow who is also mostly invisible in such an affluent neighbourhood. I always make of point of saying good morning.

Lately, there is the Bank of Montreal advisor (we have FIVE banks in two Village blocks!) whose office window is level with the sidewalk and Zeus often sits looking at him when he’s at his desk, and he waves back! We’ve even gone in to meet him in person and he’ll stop to say hi on his way to and from work.

They often say that Toronto is a city of villages, and I think that’s true. But any village is also made up of people – bankers or shopkeepers, teachers and pharmacists who know you by name (sadly LOL!) People just living their lives, and those who might well be labelled as characters. I’d probably be considered an extrovert (although I might argue that it’s situational), but isn’t life richer for engaging in your village, wherever it is?

Last Word
Not enhanced!

When I’m not walking dogs or philosophizing about villagers, I’m still serving as Director and Archivist of The Queen’s Own Rifles of Canada’s Regimental Museum and Archive. Working on updating museum policies, responding to research requests, and adding names of soldiers to our public-facing Collections Database (with 7,100 names so far!) And spending time in Brighton, which is a short drive to the attractions of Prince Edward County (friends own The Old Third Winery with an awesome past bar if you’re ever down that way) and buying lottery tickets for that elusive dream of becoming a millionaire.

Thank you to everyone for your support during my journey, and I wish you all a safe and happy summer!

John

 

 

March 2023 Update

Yes, I know its been quite a while since my last post but to be fair I didn’t have a huge amount to tell so I thought it best to wait until I had something worthwhile to report than just “another day in retirement” LOL

In the last week of December, I was given the OK to drive again and got to Brighton to spend Christmas with my parents just before the big storm hit. Every time I let my 12 lb dog out over the next three days, I had to ensure he didn’t blow away! It’s certainly nice not to have to depend on someone else driving me around again. Went again to Brighton with a sister on February 4 & 5 although this time we weren’t so lucky in missing the snowstorm – at least on the way there.

I was pleased to attend The Queen’s Own Rifles of Canada’s change of Honorary Lieutenant Colonel event held at Casa Loma on January 22nd which included the surprise attendance of the Minister of National Defence. A great event which finished with a reception in the QOR Museum on the third floor.

On February 2nd we once again held our in-person museum volunteer recognition night at the Royal Canadian Military Institute after three years of virtual events as a result of the pandemic.

Current archiving project…..sigh

On one of those nice Saturdays we had (when the snow had all melted and the next dump was still to come) Apollo and I headed down to Cherry Beach dog park for a good run (well walk for me – he covers about three times my distance running back and forth!) And in March I was able to join friends John, John, Brent, Brian and Joe for Sunday brunch where I sated my long-time yearning for eggs benedict 🙂

Other than that, I spend most of my days on museum work (from home) – processing archival materials, dealing with financial updates, responding to research requests, and sorting out accession records – never a dull moment he says sarcastically! And of course, enjoying – most days at least – three walks a day with Apollo. Sometimes the weather shortens those but he really can’t miss them completely 😉

Now that the fun stuff is out of the way, some of you may be wondering how the journey with cancer is progressing. As I think I’ve previously mentioned, I’m having immunotherapy treatments (infusions of NIVOLUMAB) once a month instead of every two weeks.  This requires blood work and a doctor’s appointment at Princess Margaret Hospital, followed by the treatment a couple of days later. It’s given by IV and takes maybe 30 minutes – often the wait time to get a chair takes longer but thanks to Audible, the wait doesn’t usually seem too long.  Unlike chemotherapy, there are minimal side effects – a rash (controlled by a steroid cream), lack of appetite (I’ve lost about 35 lbs over 14 months – not a bad thing all-round lol), some lack of taste, and some drowsiness. But clearly, nothing to complain about at all.

Last week I had some scans (MRI for my brain and CT for everywhere else) and the results were all positive. The brain team summary was: Further interval improvement. Further decrease in size of the small residual left occipital lobe enhancing lesion, and decrease in size of the other lesions to the point where there are no longer perceptible, and no evidence of any new lesions. As a reminder, I was first diagnosed with 10 lesions in my brain (for some reason they call them tumours elsewhere in your body…) so things have definitely moved in the right direction 🙂

Although I haven’t discussed the CT scan results with the doctor yet (it’s a different team from the brain doctors), they seem to indicate similar progress.

So going forward, more of the same, continuing the immunotherapy treatment once a month, and repeating the scans in three months as the next check on progress.

Meanwhile, we can only hope that spring weather comes sooner than the current forecasts!

 

 

 

 

One Door Closes – Another Door Opens

At least that’s the adage.

Door Closing

Although I haven’t been working since December because of my health “challenges”, today is my first day of official retirement, and I guess that’s the door closing. I don’t feel like it’s slamming though – perhaps because of working from home for almost two years – and not working at all for 10 months! There are many things I won’t miss of course – many of you referred to them in the retirement card I received today. That said, I’m debating what to call a book I’d like to write now that I’m retired (although I probably won’t LOL). Some possible titles include:

  • “Yes, there really are stupid questions!”
  • “Why exactly is this so urgent?”
  • “How to prepare materials you’re not sure anyone will actually read.”
  • “Why could anyone possibly need 10 pages of background materials for a 15-minute meeting they haven’t yet decided to attend?” (<Cough> AMO/ROMA)

I’m leaning toward the first one but just wish I’d kept a list LOL.

On the plus side though, are the (almost) universally talented, dedicated and pleasant colleagues I had the pleasure of working with over my 17+ years with the OPS. I particularly appreciated the fact that they didn’t blame me (the ultimate middleman) for the constant requests to respond to questions or provide materials at the very last minute! MHSTCI (and its various configurations) has some exceptionally talented members working for the benefit of the people of Ontario. I learned a lot about many subjects the ministry dealt with which was always handy for making small talk at cocktail parties! It’s certainly my colleagues I will miss the most.

Door Opening

What next? Who knows! Dealing with my health is certainly the first priority but that continues to look positive. At some point – perhaps next spring or summer – I have a few travel plans to check off my bucket list depending on how the pandemic ebbs and flows.

After 10+ years as Curator, I’ll continue my volunteering for The Queen’s Own Rifles of Canada Regimental Museum and Archive although in a slightly more administrative role as Director and Acting Archivist. Anyone in the museum and archives world knows that processing archival donations is a very different kettle of fish from cataloging museum donations, and I’m mostly enjoying the challenge of wrapping my head around those differences.

I do have some more serious publishing projects that have been hanging over my head for some time.  Since our transcription project in 2014, I’ve been very slowly working toward publishing the First World War war diaries of the 3rd Battalion, Canadian Expeditionary Force. This is one of the Battalions that the QOR perpetuates. I’m part way there but one thing after another keeps taking priority.

The other is creating for my own benefit, a photo book from my 2019 trip to Belgium and France for the 75th Anniversary of D-Day, followed by my 3,000 km drive around France. I’ve started but again…

And then there is more purging of closets and wardrobes and drawers and file cabinets. Hmmmm…maybe I should build a SharePoint site to keep track of these projects??  LOL

On Another Note

Unfortunately because of potential COVID exposures, I didn’t make it to Brighton to spend Thanksgiving with my parents. But all was not lost (certainly not any lbs!) as I got to have dinner with one of my sisters and her family in Pickering – with lots of leftovers to bring home!

Siblings at West Montrose Cover Bridge Oct 2022

And on October 22nd (that beautiful sunny and 20C day) my three sisters and I took a road trip to Wellington County. Our first stop was in Crosshill where some of our ancestors had lived, followed by Hawkesville which was actually founded by our Hawkes ancestors.

One of the latter was a sister of Samuel Lount. For those local history buffs out there, 10 points if you can tell us (in the comments below and preferably WITHOUT the help of Google) what Lount is known for; 15 points if you can tell us his fate; and 25 points if you can tell us what arrived a few weeks later. (There is no prize actually but humour me!)  I’ll provide or confirm the answers in my next post.

We then stopped by the West Montrose covered bridge (which is a designated heritage structure under the OHA) where we had our photo taken by a delightful Canadian Armed Forces veteran.

Then it was off to Elora and its spectacular gorge. Elora was packed.  I imagine this was because people thought it it could be the last nice weekend of the fall, and because the colours were pretty much at their peak.  A great lunch on the Handsome Devil Bistro patio (we had Apollo with us) and a pleasant wander through the rest of the village and made every opportunity for a photo op LOL

Then it was off to Fergus on the way home – clearly, those Scottish mason settlers knew what they were doing! One last spectacular view of the colours as we descended County Rd 25 from Acton down to the 401 where we then joined the stop-and-go traffic for longer than any of us expected.  A great day out and thanks to my sisters for spending the day with me.

Lastly, I have more scans at the end of the month and hopefully, in December the brain oncologist will tell me I’m allowed to drive again. It’s not the end of the world but depending on others for rides is still not something I’m used to…

Until next time, enjoy the final days of autumn!!