Total Brain Radiation

My apologies for the delay since my last post however as flagged in my first post, unexpected circumstances pop up and slow things down.


Total Brain Radiation

So while we awaited the results of the lung tumour biopsy, I was also referred to a brain oncologist for a consultation.  Sister Sue (RN) had the day off and offered to meet me at Princess Margaret Hospital as a second pair of ears. The consultant’s advice was to start five consecutive days of reasonably low dose radiation in order to halt the growth of the ten or so small tumours in my brain. There were a variety of potential side effects flagged including losing my hair, but they did not seem to outweigh the option of doing nothing.

They offered to let me take my mask home.

With the call made to proceed, they quickly (this was Thursday!) set up the treatments to start on Saturday. First, however, they needed to create a mask moulded to my face to which would keep my head locked in place during the treatment. Luckily they were able to do this while we waited.

Now the bureaucratic part started LOL. I had been transported to TWH to PMH by a transfer ambulance while my sister met me there. I was dropped off in time for my 9:30 am consultation and by the time we completed everything it was just before noon. Reporting back to the transportation coordinator we were told my return was booked for 4:30 pm.  Nobody wants to sit around in a hospital doing nothing for another 4+ hours so my sister noted she was an RN and asked if she could just drive me the 10 MINUTE drive to TWH. Apparently, this was a highly unusual request and took almost 30 minutes to get a doctor’s approval/release…sigh.

Treatments

Not me!

The five treatments were virtually identical: transfer ambulance staff pick you up from TWH, and take you to the treatment room in the second basement level at PMH. (While their vehicles had little suspension, the attendants were all very friendly and attentive!) When the six-inch doors to the treatment room opened, the low lighting, soothing music, palm tree wallpaper, and fake window of a beach scene, were clearly meant to make this a relaxing experience lol.  You are transferred onto the radiation table, had your radiation mask locked to it, and then listened for the chimes to signal the count down as the technician slipped out and the door slid shut – the same Westminister chime used in the Old City Hall clock tower opposite our offices at 401 Bay St LOL

The machine whirs around your head for about ten minutes and then you’re done! And they pack you back up and return you to Toronto Western.

Sacrifice

One afternoon during these treatments, I was reading my book while a member of the housekeeping staff was changing the bedding on my roommate’s bed. When she was done, she asked if I wanted mine changed too and I gladly accepted.  I stood back out of the way as she quickly stripped the sheets and replaced them. The bottom sheet was fitted but the top sheet required what both my mother and the military had taught me were “hospital corners” and when the Filipino-born housekeeper started to make the folds, I chuckled and said out loud “ahhh…..hospital corners.”

She smiled and told me that 16 years ago when she first arrived in Canada, she had no idea what “hospital corners” were because in the Philipines she didn’t have a bed per see – just mats on the floor. She mentioned a son who was just 6 years old when she came to Canada and how it had taken 5 years to bring him over as well.  All before the era of instant text messaging and video calling. I couldn’t help but be moved by her story which she shared without any bitterness – if anything with appreciation.

9 thoughts on “Total Brain Radiation

  1. John, I have enjoyed reading your short stories about your adventures with the health system and your diagnosis. I suppose like many, the moment you heard “cancer” you mind goes into a virtual shut down and then you start to realize there are decisions to make to allow you to move forward in this very unplanned and unwelcomed journey. While it is easy to say “why me” to which there is never an answer, it is very nice to see that inspite of all of this you have not lost your appreciation of all those who work so hard for us and provide the best care possible. My best wishes are with you and I look forward to more of your stories and a complete recovery.

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  2. Alas I am dragged back almost two years to my 28 days of continuous visits to Credit Valley
    Hospital for head radiation. Every day a different time of course. I came in and they greeted
    me nicely, all great people, especially Nick, who was in charge, Then they lashed down my
    head with a mask similar to yours but with no eye holes. No pain no problem. The annoying
    thing was it started to burn my face after two weeks. And got worse until the end.
    After all the treatments as you leave you get to ring the bell in the hall area. WOW!
    All the people I met were great. Some had far more serious issues. All smiled anyway.
    It’s a trip in life a lot of us have to take. I should have looked after it earlier. I had several
    doctors before one discovered it, who should have been car mechanics.
    Peter S

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  3. Keep that mask, J. You’ll need it when you take up fencing. “Without any bitterness” could be the subtitle of your blog. When you’re better, I’ll help you turn this blog into a bestseller. Love, dk xo

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    1. I did indeed keep the mask! And we’ll have to see how long the “without any bitterness” lasts lol. I definitely realize it’s harder to write something from scratch than edit someone else’s work!

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      1. I’d add to “without any bitterness,” “but a lot of grace.” There is so much grace to your writing (from scratch) about this time in your life that it comforts me, though it feels like it should be the other way around! So, I will support Dahlia to make your blog a bestseller by offering my long-ago book trade experience to set up your speaking engagements and book signings! xo Eddy

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  4. John, so sorry to hear of your diagnosis & wishing you all the strength & courage in the ongoing battle – which you’ve clearly demonstrated to date. I echo what Dahlia & Eddy say above regarding “without any bitterness” and “a lot of grace”. (And I feel chastened for my bit of bitterness I had when a pandemic hit shortly after my retirement). However, I look forward to you repurposing that mask down the road for fencing, or for a Jacques Plante style goalie mask! Keep writing & all the best, Alan

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